I remember so clearly that moment in hospital, New Years Eve 2004, when a paediatrician told me that my baby had Downs syndrome. He told me about so many things that he may not be able to do – maybe he wouldn’t walk, maybe he wouldn’t talk, maybe he wouldn’t be like other babies, grow like other children, behave like other adults when he grew up. It was a sad day. The fight in me on that day was pretty determined though that no-one was ever going to tell this tiny baby that he couldn’t do something ever again – that with me fighting his corner I would always make sure he tried. But 16 years on I still look back on that as a sad day.
This isn’t going to be a sad piece though, because when I think about hearing loss and Downs syndrome, I realise that it is one of the extras! Oh, how I wish I had known about the extras! 16 years of experience tells me it’s the extra things we DO HAVE that make the difference. It’s the extra things that define us and direct us far more than the things we do not have!